The facility provides a high-quality research environment for investigations into the causes and treatment of dementia, and care provided by relatives and friends. It commissions and continue to build a balanced portfolio of scientific and clinical research as well as develop and maintain a dementia brain tissue bank.
We were delighted that on the 29th of September 2022, BBC News Scotland reported on the findings from research investigating changes to dementia diagnosis during Covid-19, a collaborative project between the Alzheimer Scotland Dementia Research Centre (ASDRC) and Edinburgh Centre for Research on the Experience of Dementia (ECRED). The project was co-produced by “BUDDs” (Better Understanding Dementia Diagnosis), a group made up of people with lived experience of dementia and researchers, and funded by the UK Research and Innovation (UKRI).
In the article, BUDD members, Barry and Margaret, share their experiences of dementia and diagnosis during the Covid-19 pandemic. The key findings of the study are also highlighted by Lindsay Kinnaird, a researcher on the project. You can read the full article on the BBC News Scotland website.
Following on from BBC Scotland's feature, the Herald Scotland (2nd October 2022) also reported on the research. In the article, BUDDs member, Louise, discusses her experiences with her mum's dementia, and the impact of the Covid-19 pandemic. ASDRC Director and Principle Investigator of the research project, Dr Tom Russ, who is also a Consultant Psychiatrist who worked throughout Covid-19, also discusses changes to diagnosis that occurred during Covid-19. The key findings of the study are also discussed. Read the full article on the Herald Scotland website here.
The research team and the centre are extremely grateful for all the valuable contributions and time BUDDs gave to the project. The team thoroughly enjoyed working with BUDDs throughout and, with the project now at an end, will miss them greatly! To read about the project and view the project report and animations, visit the project webpage here.